Director, Disease Monitoring Programs, Neurology (Remote)

Why Join Us? &nbsp; Be a hero for our rare disease patients &nbsp; At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do.&nbsp;To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.&nbsp; &nbsp; Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work.&nbsp;Ultimately, we want to be an organization where we would be proud for our family, friends and children to work. &nbsp; If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and&nbsp;personally, come join our team . Position Summary: ultra curious – Apply your biggest ideas in courageous ways The &nbsp;Director of Disease Monitoring Programs (DMP s ) &nbsp;is&nbsp; a visible leadership role&nbsp; accountable for&nbsp; the strategic &nbsp;planning &nbsp;and &nbsp;oversight for one or more assigned&nbsp; DMPs .&nbsp;&nbsp; DMPs &nbsp;are a novel approach to GCP-compliant long-term data collection for rare diseases from pre-approval through post marketing . The&nbsp; Director of DMPs</s